Find Resources
Emerging Practices that show potential to achieve desirable public health outcomes in a specific real-life setting and produce early results that are consistent with the objectives of the activities and thus indicate effectiveness.
RELEASE DATE:
Summary Report/Recommendations
The U.S. Department of Health and Human Services (HHS) has taken significant steps to address the long-term effects of COVID-19, known as “Long COVID.” These actions include establishing advisory committees, forming offices dedicated to Long COVID research and practice, and providing technical guidance for evaluating disabilities related to Long COVID. HHS has also delivered comprehensive reports to the President outlining support services and research strategies. These efforts, in collaboration with various federal agencies, aim to assist individuals in living independently and participating in their communities while dealing with the ongoing impacts of COVID-19. Numerous resources, such as guides, civil rights protections, and workplace accommodations, have been made available to support those affected by Long COVID.
Emerging Practices that show potential to achieve desirable public health outcomes in a specific real-life setting and produce early results that are consistent with the objectives of the activities and thus indicate effectiveness.
RELEASE DATE:
White Paper/Brief
This article discusses the need for a disability data justice framework to support health equity goals. Even though 27% of American adults report having a disability, there exists limited COVID-19 data for the disabled community. Some public health surveys administered during the pandemic did not incorporate questions around disability until 2021. The article presents a series of recommendations on ways to achieve disability data justice. These include making disability a core element of all demographic data collection alongside race, ethnicity, and gender identity, increasing representation of disabled people across health professions, collaborating with members of the disabled community when developing and implementing disability data collection, and making health data accessible to all people with disabilities.
Promising Practices that show evidence of effectiveness in improving public health outcomes in a specific real-life setting, as indicated by achievement of aims consistent with the objectives of the activities, and are suitable for adaptation by other communities.
RELEASE DATE:
White Paper/Brief
This study investigates deaf American Sign Language (ASL) users’ access to telehealth and outpatient encounters during the pandemic. The findings emphasize the importance of optimizing proactive accommodation planning and access including in telehealth platforms.
Emerging Practices that show potential to achieve desirable public health outcomes in a specific real-life setting and produce early results that are consistent with the objectives of the activities and thus indicate effectiveness.
RELEASE DATE:
White Paper/Brief
Director of the Health Equity Core at Harvard Medical School, Professor Sprague Martinez has organized a team of partners to identify the impact of long COVID on Black and Latinx communities in Massachusetts and barriers they experience in accessing treatment. The project is part of the Massachusetts Consortium on Pathogen Readiness, which aims to address the challenges of COVID-19 and future pandemics. The Health Equity Core focuses on understanding the impact of long COVID on diverse communities, increasing access to treatment and resources, and influencing relevant policies. The team includes partners from various institutions and will emphasize community engagement, data collection, dissemination, and policy advocacy efforts.
Emerging Practices that show potential to achieve desirable public health outcomes in a specific real-life setting and produce early results that are consistent with the objectives of the activities and thus indicate effectiveness.
RELEASE DATE:
Summary Report/Recommendations
This report outlines a framework for supporting people with long COVID through increased public awareness, accommodations within the school and workplace, research, and advocacy. It emphasizes a person-centered approach to designing this framework and understanding the lived experiences of people with long COVID. As such, recommendations focus on areas identified to be of greatest importance to the community, rather than clinical researchers.
Promising Practices that show evidence of effectiveness in improving public health outcomes in a specific real-life setting, as indicated by achievement of aims consistent with the objectives of the activities, and are suitable for adaptation by other communities.
RELEASE DATE:
White Paper/Brief
This resource lists tips for how to support people experiencing post-COVID conditions such as long COVID. Guidance includes compassionate listening, stress mitigation techniques, and referring people to external resources. Support groups for post-COVID conditions such as long COVID are listed in this resource.
Novel Practices that show potential to achieve desirable public health outcomes in a specific real-life setting and are in the process of generating evidence of effectiveness or may not yet be tested.
RELEASE DATE:
White Paper/Brief
This article discusses the development of the Visible app, which uses wearables or smart watches to help measure and manage long COVID. Visible helps to manage long COVID and other chronic fatigue diseases with a heartrate-monitored guidance strategy that emphasizes pacing as long COVID patients return to physical activity.
Best Practices that show evidence of effectiveness in improving public health outcomes when implemented in multiple real-life settings, as indicated by achievement of aims consistent with the objectives of the activities.
RELEASE DATE:
Summary Report/Recommendations, White Paper/Brief
Document presents practical strategies for caring for persons living with dementia during emergencies such as the Covid-19 pandemic. This includes (but is not limited to) giving reminders around habits to prevent illness, ensuring person-centered care, and continuing connections with family and friends.
Emerging Practices that show potential to achieve desirable public health outcomes in a specific real-life setting and produce early results that are consistent with the objectives of the activities and thus indicate effectiveness.
RELEASE DATE:
Summary Report/Recommendations
The resource presents best practices for increasing access to COVID-19 testing and vaccination sites for people with disabilities or special health needs. It highlights physical, sensory, cognitive, and technological ease of access, and gives practical ideas for improving access throughout all steps of the testing/vaccination experience. Ideas include topics from accessible parking to ensuring clear communication despite the use of face masks.
Novel Practices that show potential to achieve desirable public health outcomes in a specific real-life setting and are in the process of generating evidence of effectiveness or may not yet be tested.
RELEASE DATE:
Summary Report/Recommendations
This report highlights COVID-19 responses that benefit dually eligible individuals, including effective communication, supporting community members/caregivers, residential care facilities, and care transitions.