Practices that show potential to achieve desirable public health outcomes in a specific real-life setting and produce early results that are consistent with the objectives of the activities and thus indicate effectiveness.

A Need for Disability Data Justice

Swenor, B.K.

Release Date:

White Paper/Brief

Data Collection and Analysis
Social and Community Context
Tools Included
Outside U.S.

Data Collection and Reporting

This article discusses the need for a disability data justice framework to support health equity goals. Even though 27% of American adults report having a disability, there exists limited COVID-19 data for the disabled community. Some public health surveys administered during the pandemic did not incorporate questions around disability until 2021. The article presents a series of recommendations on ways to achieve disability data justice. These include making disability a core element of all demographic data collection alongside race, ethnicity, and gender identity, increasing representation of disabled people across health professions, collaborating with members of the disabled community when developing and implementing disability data collection, and making health data accessible to all people with disabilities.

Resource Details

Outcomes of Interest

Improve Data Infrastructure, Reduction of Health Disparities

Priority Population(s)

People With Disabilities

Setting(s) of Implementation


Geographic Area of Implementation

Implementation Period