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Emerging Practices that show potential to achieve desirable public health outcomes in a specific real-life setting and produce early results that are consistent with the objectives of the activities and thus indicate effectiveness.
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Summary Report/Recommendations
The U.S. Department of Health and Human Services (HHS) has taken significant steps to address the long-term effects of COVID-19, known as “Long COVID.” These actions include establishing advisory committees, forming offices dedicated to Long COVID research and practice, and providing technical guidance for evaluating disabilities related to Long COVID. HHS has also delivered comprehensive reports to the President outlining support services and research strategies. These efforts, in collaboration with various federal agencies, aim to assist individuals in living independently and participating in their communities while dealing with the ongoing impacts of COVID-19. Numerous resources, such as guides, civil rights protections, and workplace accommodations, have been made available to support those affected by Long COVID.
Emerging Practices that show potential to achieve desirable public health outcomes in a specific real-life setting and produce early results that are consistent with the objectives of the activities and thus indicate effectiveness.
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Other
The article discusses the challenges and frustrations surrounding Long COVID research in the United States. Despite substantial investments and numerous research efforts, progress in understanding and treating Long COVID has been slow and disappointing. Experts and patient advocates have criticized the research community for its focus on disease development rather than direct patient care, duplication of studies, and a lack of clinical trials. The authors propose a new hypothesis that Long COVID may be a form of post-infectious syndrome or chronic fatigue syndrome, suggesting that traditional biomedical research approaches may not yield meaningful results. Instead, they advocate for a shift towards health services research and measures that directly impact patients’ welfare, including prevention, improved prognosis, access to empathetic care, and quality of life issues. They emphasize the need for collaboration between researchers, patients, and advocacy groups to reset the research agenda effectively.
Emerging Practices that show potential to achieve desirable public health outcomes in a specific real-life setting and produce early results that are consistent with the objectives of the activities and thus indicate effectiveness.
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White Paper/Brief
Director of the Health Equity Core at Harvard Medical School, Professor Sprague Martinez has organized a team of partners to identify the impact of long COVID on Black and Latinx communities in Massachusetts and barriers they experience in accessing treatment. The project is part of the Massachusetts Consortium on Pathogen Readiness, which aims to address the challenges of COVID-19 and future pandemics. The Health Equity Core focuses on understanding the impact of long COVID on diverse communities, increasing access to treatment and resources, and influencing relevant policies. The team includes partners from various institutions and will emphasize community engagement, data collection, dissemination, and policy advocacy efforts.