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Emerging Practices that show potential to achieve desirable public health outcomes in a specific real-life setting and produce early results that are consistent with the objectives of the activities and thus indicate effectiveness.
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Summary Report/Recommendations
The U.S. Department of Health and Human Services (HHS) has taken significant steps to address the long-term effects of COVID-19, known as “Long COVID.” These actions include establishing advisory committees, forming offices dedicated to Long COVID research and practice, and providing technical guidance for evaluating disabilities related to Long COVID. HHS has also delivered comprehensive reports to the President outlining support services and research strategies. These efforts, in collaboration with various federal agencies, aim to assist individuals in living independently and participating in their communities while dealing with the ongoing impacts of COVID-19. Numerous resources, such as guides, civil rights protections, and workplace accommodations, have been made available to support those affected by Long COVID.
Emerging Practices that show potential to achieve desirable public health outcomes in a specific real-life setting and produce early results that are consistent with the objectives of the activities and thus indicate effectiveness.
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Other
The article discusses the challenges and frustrations surrounding Long COVID research in the United States. Despite substantial investments and numerous research efforts, progress in understanding and treating Long COVID has been slow and disappointing. Experts and patient advocates have criticized the research community for its focus on disease development rather than direct patient care, duplication of studies, and a lack of clinical trials. The authors propose a new hypothesis that Long COVID may be a form of post-infectious syndrome or chronic fatigue syndrome, suggesting that traditional biomedical research approaches may not yield meaningful results. Instead, they advocate for a shift towards health services research and measures that directly impact patients’ welfare, including prevention, improved prognosis, access to empathetic care, and quality of life issues. They emphasize the need for collaboration between researchers, patients, and advocacy groups to reset the research agenda effectively.
Emerging Practices that show potential to achieve desirable public health outcomes in a specific real-life setting and produce early results that are consistent with the objectives of the activities and thus indicate effectiveness.
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White Paper/Brief
Director of the Health Equity Core at Harvard Medical School, Professor Sprague Martinez has organized a team of partners to identify the impact of long COVID on Black and Latinx communities in Massachusetts and barriers they experience in accessing treatment. The project is part of the Massachusetts Consortium on Pathogen Readiness, which aims to address the challenges of COVID-19 and future pandemics. The Health Equity Core focuses on understanding the impact of long COVID on diverse communities, increasing access to treatment and resources, and influencing relevant policies. The team includes partners from various institutions and will emphasize community engagement, data collection, dissemination, and policy advocacy efforts.
Promising Practices that show evidence of effectiveness in improving public health outcomes in a specific real-life setting, as indicated by achievement of aims consistent with the objectives of the activities, and are suitable for adaptation by other communities.
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Peer Review Study
This analysis identifies risk factors and socio-economic impacts of long COVID with a public health lens. It notes that more analysis is needed, but encourages the impacts of long COVID to be seen within a larger social, and not just medical, context. Workplace and family structure implications are substantial. Long COVID should be tracked as distinct condition using person-centered research techniques that include traditionally underrepresented populations such as children.
Promising Practices that show evidence of effectiveness in improving public health outcomes in a specific real-life setting, as indicated by achievement of aims consistent with the objectives of the activities, and are suitable for adaptation by other communities.
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White Paper/Brief
This resource lists tips for how to support people experiencing post-COVID conditions such as long COVID. Guidance includes compassionate listening, stress mitigation techniques, and referring people to external resources. Support groups for post-COVID conditions such as long COVID are listed in this resource.
Novel Practices that show potential to achieve desirable public health outcomes in a specific real-life setting and are in the process of generating evidence of effectiveness or may not yet be tested.
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White Paper/Brief
This article discusses the development of the Visible app, which uses wearables or smart watches to help measure and manage long COVID. Visible helps to manage long COVID and other chronic fatigue diseases with a heartrate-monitored guidance strategy that emphasizes pacing as long COVID patients return to physical activity.
Promising Practices that show evidence of effectiveness in improving public health outcomes in a specific real-life setting, as indicated by achievement of aims consistent with the objectives of the activities, and are suitable for adaptation by other communities.
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Case Study
A UK-based program gradually increased physical activity among people suffering from long COVID. Physical activity regimes were established by clinicians and gradually increased in intensity over six weeks. Over the course of the program, significant reductions in episodes of “crashing” and symptoms of breathlessness and headaches were reported by participants.
Promising Practices that show evidence of effectiveness in improving public health outcomes in a specific real-life setting, as indicated by achievement of aims consistent with the objectives of the activities, and are suitable for adaptation by other communities.
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Peer Review Study
This article is part of a series that explores COVID-19 related experiences of assistive technology (AT) users across the world. This article focuses on a survey of AT users from six regions, and the results show that AT users in minority groups living with existing health disparities are unduly impacted by the functionality of AT tools. The article offers specific recommendations for future action to strengthen AT across public policy and civil society in pandemic preparedness and response.
Emerging Practices that show potential to achieve desirable public health outcomes in a specific real-life setting and produce early results that are consistent with the objectives of the activities and thus indicate effectiveness.
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Summary Report/Recommendations
The resource presents best practices for increasing access to COVID-19 testing and vaccination sites for people with disabilities or special health needs. It highlights physical, sensory, cognitive, and technological ease of access, and gives practical ideas for improving access throughout all steps of the testing/vaccination experience. Ideas include topics from accessible parking to ensuring clear communication despite the use of face masks.
Novel Practices that show potential to achieve desirable public health outcomes in a specific real-life setting and are in the process of generating evidence of effectiveness or may not yet be tested.
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Summary Report/Recommendations
This report highlights COVID-19 responses that benefit dually eligible individuals, including effective communication, supporting community members/caregivers, residential care facilities, and care transitions.