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Emerging Practices that show potential to achieve desirable public health outcomes in a specific real-life setting and produce early results that are consistent with the objectives of the activities and thus indicate effectiveness.
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Op-ed
This op-ed discusses the minimal progress that has been made towards understanding the causes and treatment of long COVID. The main crux of the author’s argument is that long COVID is essentially the same condition as post-infectious syndrome or myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). Thus, long COVID is actually not a new condition, but rather something triggered by acute COVID in the same way that many other illnesses can trigger ME/CFS in individuals. ME/CFS itself is not well-understood, but the years of research and patient experiences with the condition could be applied to the body of long COVID research for the advancement of both causes.
Best Practices that show evidence of effectiveness in improving public health outcomes when implemented in multiple real-life settings, as indicated by achievement of aims consistent with the objectives of the activities.
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Peer Review Study
According to recent data from the Centers for Disease Control and Prevention (CDC), the percentage of individuals reporting Long COVID symptoms has decreased from 19% in June 2022 to 11% in January 2023 among those who have had COVID-19. While this decline is notable, 15% of all US adults have reported experiencing Long COVID symptoms at some point, with 6% currently affected. Long COVID continues to pose challenges, including limitations in daily activities for 79% of those affected and potential long-term disabilities. Efforts to address Long COVID include research initiatives and public health actions, but its full impact and the reasons behind the decline in reported cases remain subjects of ongoing study and concern.
Promising Practices that show evidence of effectiveness in improving public health outcomes in a specific real-life setting, as indicated by achievement of aims consistent with the objectives of the activities, and are suitable for adaptation by other communities.
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Press Release
The U.S. Department of Health and Human Services has announced the establishment of the Office of Long COVID Research and Practice to address the long-term effects of COVID-19. This office will coordinate the government’s response to Long COVID, including associated conditions and the implementation of a National Research Action Plan. Over 14 federal departments and divisions are working together to reduce the impact of Long COVID and improve the quality of life for those affected. Additionally, the National Institutes of Health has launched the RECOVER Initiative, a $1.15 billion research program focused on understanding, treating, and preventing Long COVID. The initiative involves large-scale studies and clinical trials to develop interventions for the condition.
Emerging Practices that show potential to achieve desirable public health outcomes in a specific real-life setting and produce early results that are consistent with the objectives of the activities and thus indicate effectiveness.
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Other
The article discusses the challenges and frustrations surrounding Long COVID research in the United States. Despite substantial investments and numerous research efforts, progress in understanding and treating Long COVID has been slow and disappointing. Experts and patient advocates have criticized the research community for its focus on disease development rather than direct patient care, duplication of studies, and a lack of clinical trials. The authors propose a new hypothesis that Long COVID may be a form of post-infectious syndrome or chronic fatigue syndrome, suggesting that traditional biomedical research approaches may not yield meaningful results. Instead, they advocate for a shift towards health services research and measures that directly impact patients’ welfare, including prevention, improved prognosis, access to empathetic care, and quality of life issues. They emphasize the need for collaboration between researchers, patients, and advocacy groups to reset the research agenda effectively.
Emerging Practices that show potential to achieve desirable public health outcomes in a specific real-life setting and produce early results that are consistent with the objectives of the activities and thus indicate effectiveness.
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White Paper/Brief
Director of the Health Equity Core at Harvard Medical School, Professor Sprague Martinez has organized a team of partners to identify the impact of long COVID on Black and Latinx communities in Massachusetts and barriers they experience in accessing treatment. The project is part of the Massachusetts Consortium on Pathogen Readiness, which aims to address the challenges of COVID-19 and future pandemics. The Health Equity Core focuses on understanding the impact of long COVID on diverse communities, increasing access to treatment and resources, and influencing relevant policies. The team includes partners from various institutions and will emphasize community engagement, data collection, dissemination, and policy advocacy efforts.