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Emerging Practices that show potential to achieve desirable public health outcomes in a specific real-life setting and produce early results that are consistent with the objectives of the activities and thus indicate effectiveness.
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Op-ed
This op-ed discusses the minimal progress that has been made towards understanding the causes and treatment of long COVID. The main crux of the author’s argument is that long COVID is essentially the same condition as post-infectious syndrome or myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). Thus, long COVID is actually not a new condition, but rather something triggered by acute COVID in the same way that many other illnesses can trigger ME/CFS in individuals. ME/CFS itself is not well-understood, but the years of research and patient experiences with the condition could be applied to the body of long COVID research for the advancement of both causes.
Best Practices that show evidence of effectiveness in improving public health outcomes when implemented in multiple real-life settings, as indicated by achievement of aims consistent with the objectives of the activities.
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Peer Review Study
According to recent data from the Centers for Disease Control and Prevention (CDC), the percentage of individuals reporting Long COVID symptoms has decreased from 19% in June 2022 to 11% in January 2023 among those who have had COVID-19. While this decline is notable, 15% of all US adults have reported experiencing Long COVID symptoms at some point, with 6% currently affected. Long COVID continues to pose challenges, including limitations in daily activities for 79% of those affected and potential long-term disabilities. Efforts to address Long COVID include research initiatives and public health actions, but its full impact and the reasons behind the decline in reported cases remain subjects of ongoing study and concern.
Emerging Practices that show potential to achieve desirable public health outcomes in a specific real-life setting and produce early results that are consistent with the objectives of the activities and thus indicate effectiveness.
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Journal
This editorial from The Lancet Respiratory Medicine discusses the growing public health crisis of Long COVID. It highlights that over 65 million people worldwide are estimated to have post-acute sequelae of COVID-19, and there is an urgent need for preventive, rehabilitative, and therapeutic strategies to address this issue. The article emphasizes the importance of vaccination against SARS-CoV-2 in reducing the risk of Long COVID and mentions the potential benefits of early outpatient treatment in preventing it. However, challenges remain in defining Long COVID, diagnosing it reliably, and understanding its causes and mechanisms. The article calls for large-scale research initiatives to explore these aspects, identify diagnostic and prognostic biomarkers, and develop targeted interventions. It also emphasizes the importance of considering the needs of vulnerable populations and providing patient-centered care for Long COVID.
Promising Practices that show evidence of effectiveness in improving public health outcomes in a specific real-life setting, as indicated by achievement of aims consistent with the objectives of the activities, and are suitable for adaptation by other communities.
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Press Release
The U.S. Department of Health and Human Services has announced the establishment of the Office of Long COVID Research and Practice to address the long-term effects of COVID-19. This office will coordinate the government’s response to Long COVID, including associated conditions and the implementation of a National Research Action Plan. Over 14 federal departments and divisions are working together to reduce the impact of Long COVID and improve the quality of life for those affected. Additionally, the National Institutes of Health has launched the RECOVER Initiative, a $1.15 billion research program focused on understanding, treating, and preventing Long COVID. The initiative involves large-scale studies and clinical trials to develop interventions for the condition.
Emerging Practices that show potential to achieve desirable public health outcomes in a specific real-life setting and produce early results that are consistent with the objectives of the activities and thus indicate effectiveness.
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Summary Report/Recommendations
The U.S. Department of Health and Human Services (HHS) has taken significant steps to address the long-term effects of COVID-19, known as “Long COVID.” These actions include establishing advisory committees, forming offices dedicated to Long COVID research and practice, and providing technical guidance for evaluating disabilities related to Long COVID. HHS has also delivered comprehensive reports to the President outlining support services and research strategies. These efforts, in collaboration with various federal agencies, aim to assist individuals in living independently and participating in their communities while dealing with the ongoing impacts of COVID-19. Numerous resources, such as guides, civil rights protections, and workplace accommodations, have been made available to support those affected by Long COVID.
Promising Practices that show evidence of effectiveness in improving public health outcomes in a specific real-life setting, as indicated by achievement of aims consistent with the objectives of the activities, and are suitable for adaptation by other communities.
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Other
This episode from the podcast 99 Percent Invisible reflects on how the COVID-19 pandemic exposed the American public to a long-standing problem: the disjointed nature of the U.S. health system. Because state and local health departments largely operate independently and use their own data collection and analysis tools, health systems across the country lack standardized data definitions and systems. These inconsistencies made it nearly impossible to collect and analyze comprehensive, standardized data on COVID-19 cases, deaths, and vaccines administered amid the pandemic. Health experts featured on this episode believe that the pandemic made the need for an overhaul of America’s informatics system very apparent. When rebuilding this system, it’s important to focus on remedying existing inequalities in data collection and classification that in some cases render the health status of certain populations – think Native American communities and other communities of color – completely invisible in the data. By virtue of being small populations, it can be difficult for health departments to collect sufficient and/or statistically significant data on minority communities. Another issue discussed in this episode is the use of broad racial categories like “other,” “multiple races,” or even “Asian American,” which, if not disaggregated, obscures the health status of diverse populations who are grouped under the same category. Without comprehensive and inclusive health data, it’s difficult to identify disparities and implement policies and programming that promote social mobility and health equity.
Emerging Practices that show potential to achieve desirable public health outcomes in a specific real-life setting and produce early results that are consistent with the objectives of the activities and thus indicate effectiveness.
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Other
The article discusses the challenges and frustrations surrounding Long COVID research in the United States. Despite substantial investments and numerous research efforts, progress in understanding and treating Long COVID has been slow and disappointing. Experts and patient advocates have criticized the research community for its focus on disease development rather than direct patient care, duplication of studies, and a lack of clinical trials. The authors propose a new hypothesis that Long COVID may be a form of post-infectious syndrome or chronic fatigue syndrome, suggesting that traditional biomedical research approaches may not yield meaningful results. Instead, they advocate for a shift towards health services research and measures that directly impact patients’ welfare, including prevention, improved prognosis, access to empathetic care, and quality of life issues. They emphasize the need for collaboration between researchers, patients, and advocacy groups to reset the research agenda effectively.
Emerging Practices that show potential to achieve desirable public health outcomes in a specific real-life setting and produce early results that are consistent with the objectives of the activities and thus indicate effectiveness.
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White Paper/Brief
Director of the Health Equity Core at Harvard Medical School, Professor Sprague Martinez has organized a team of partners to identify the impact of long COVID on Black and Latinx communities in Massachusetts and barriers they experience in accessing treatment. The project is part of the Massachusetts Consortium on Pathogen Readiness, which aims to address the challenges of COVID-19 and future pandemics. The Health Equity Core focuses on understanding the impact of long COVID on diverse communities, increasing access to treatment and resources, and influencing relevant policies. The team includes partners from various institutions and will emphasize community engagement, data collection, dissemination, and policy advocacy efforts.
Promising Practices that show evidence of effectiveness in improving public health outcomes in a specific real-life setting, as indicated by achievement of aims consistent with the objectives of the activities, and are suitable for adaptation by other communities.
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Peer Review Study
The article explores how long COVID is influenced by social determinants like poverty and structural inequalities such as racism. It emphasizes the role of primary care in providing and coordinating care for vulnerable patients. Policy measures like strengthening primary care and addressing barriers faced by vulnerable populations are recommended. High-quality data collection and addressing social determinants of health are also highlighted.
Emerging Practices that show potential to achieve desirable public health outcomes in a specific real-life setting and produce early results that are consistent with the objectives of the activities and thus indicate effectiveness.
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Case Study
The Oregon county with the first confirmed COVID-19 case in the United States began its response in the earliest days of the pandemic. The county’s Emergency Operations Center wanted to center equity in its response and did so by rapidly creating new positions on the team: an Equity Officer, an Equity Technical Advisor, and a Language Access Coordinator. It also established an Equity Team within the center. This allowed responses to quickly identify and respond to population needs, especially those in communities of color experiencing disproportionate impacts of disease spread and burden.